Wednesday, October 5, 2011

What would you do?

What is Fatal Familial Insomnia? What are some of the symptoms of the disease, how long can it go undetected, and is it genetic? If you had the disease would you want to find out that you had it or would you not? Make sure you tell me why!!!!

18 comments:

courtney mccollum said...

Fatal Familial Insomnia is a disease that keeps patients awake so that they are not able to go to sleep. When people think they have this disease there are certain symptoms that they should look out for. These symptoms are having no control over your body, not having the ability to swallow, cannot focus, coughing constantly, and not being able to fall asleep even if you are extremely tired. Some people may go for months or years without realizing this disease may be affecting them. The chances of getting this disease are very slim. It is a genetic disease and there are very few families with it. The only chance a person has of catching is a 50% chance. Either coming form there mother or there father.
If I had this disease I would want to find out. I would want to know why I was not able to sleep. Also it would tell me how much longer I would have instead of not knowing that I was sick and could just die at any moment. Knowing all the side effects and things that could happen from this disease would scare me. This disease has no cure but if I found out I had it the doctors could at least try to see if there was something that could help me.
Though there is a very slim chance of getting this disease, if I ever were to get it I would want to find out.

Samantha Bruner said...

Fatal Familial Insomnia is a genetic disease in the brain that causes you not to sleep. Some of the symptoms of this disease are inability to sleep, walking unsteadily,having no control over your self and body, coughing, and giddiness. It can go undetected for a while (months or years) because doctors think you just have had to much caffeine or your just having trouble sleeping. The chances of anyone getting this disease are very small. This disease is genetic so you have a fifty fifty chance of getting it if your parent has it.
If I had this disease, yes i would want to know. I would want to know so i could figure out why i could not sleep. Also, because I wouldn't just want to die at a random time when I was not expecting it. I would want to live life to the fullest while I still could. Though this disease currently has no cure I would still want to know so I would not be confused about what was going on in my body.

Carrie Huneycutt said...

Fatal Familial Insomnia is a disease that keeps people from sleeping at all. This is a genetic disease that keeps people awake forever until their body cannot take it anymore and they die. People with this disease could go years without knowing that they had it. Some of the symptoms of this disease are not being able to swallow or sleep. If I had Fatal Familial Insomnia I would want to know. By knowing I would be able to be proactive about the way that I live. I would want to make the best of the situation I was in and be able to impact someone else’s life for the better before I died. I would want to be optimistic about my life and show that there is happiness for everyone no matter the situation, and God has the upper hand and His will would be done through what was going on.

Anonymous said...

Fatal Familial Insomnia is a disease that can go undetected for up to 50 years. It is a genetic disease that when it shows it’s symptoms, cause lack of sleep. This lack of sleep is so severe that they die. For one man, it started with a continuous cough and then 9 months later he was dead. People with this disease can dream because they go into their REM cycle, but they never sleep deep enough to sustain their life. If I had this disease, I would want to know. It’s a 50/50 chance that I could or could not have it, and I’d like to know which. Then if I didn’t have it, I could live my life relieved and have nothing to worry about. If I did end up having it, then I would know that I have a limited time and be able to live my life to the fullest. We should live that way anyways, cause we never know what day is gonna be our last.

brittany said...

Fatal familial Insomnia is a genetic disease that causes its victims to die from sleep deprivation. The symptoms of the disease are not being able to sleep or focus for periods of time, serve coughing, and little control over body. This disease can go undetected for months or years. People who suffer from this disease assume they might have a cold/flu or just trouble sleeping before they realize it is fatal familial insomnia.

If I has this disease I would like to know. Because it is genetic I would want to know before I had children and cause them to suffer and die from it. Even though there is a 50/50 chance of my children having , it wouldn’t be worth the risk of any of them dying. Knowing how long I had to live would be hard every day because I would know that time is running out. It would help me value and appreciate each moment so much more. I would cherish the little things more that most people take for granted. I think knowing would be best because your family and doctors could know how to properly treat you when the symptoms occur.

Anonymous said...

Fatal Familial Insomnia is a genetic disease that keeps you from being able to sleep. It can go unnoticed for 50 years. Some of the symptoms of FFI are coughing for long periods of time, inability to sleep, unsteady walk. If the disease has a history of being in your family then there is a 50/50 chance of having this disease and I would want to know if I had it. I would not want to go through life knowing that there was a 50% chance of having a fatal disease that way I could live worry free till it started getting bad. I would want to know so I could make sure every day was lived to the fullest and not regret missing out on something because if I did not know I had FFI a chance did not come back around I would want to make sure I did not miss a chance for something.

Ben Parker

Anonymous said...

Fatal Familial Insomnia is when a person is physically unable to fall asleep despite best efforts and desire. It is very rare genetically, but if one parent posses the gene there is a 50% chance that the offspring will contract the disease. The disease however can remain dormant until later in adult life ranging up to 50 years. Fatal Familial Insomnia has a wide range of symptoms that include relentless coughing, mentally checked out, excessive sweating, and the not sleeping thing seems pretty obvious. The disease can carry death in as little as 9 months.
I would not want to know if I had FFI until it manifested itself. That way I could live a normal life up until the point when symptoms become blatantly obvious. Otherwise my life would be depressing with the foreboding thought of death in my near future. I see two possible outcomes of know if a person has this disease young. Outcome number one the person could start to live life every day as if it is a gift which it is, and hopefully find solace in religion. Door number two would be falling into deep depression thoughts of suicide and whatnot, basically not a pleasant way to live out one’s life. They say ignorance is bliss and I believe in this situation that might be the way to go although not always the best policy. (Indecision for the win.)

Sean "Sheeen" Jenkins

Anonymous said...

Fatal Familial Insomnia is a disease that affects the ablity for one to sleep. It is a disease that is passed down through genes, so people have a 50/50 chance of getting it if it runs in the family. This disease causes a person not to fall into a deep sleep, the one that regenerates our bodies. The lack of deep sleep causes the body to become exhausted. After months of no restful sleep, the body becomes so deprived that it can no longer function and the person dies. The symptoms are a long lasting cough, lack of sleep, and loss of control over the body. Some patients also had halucination from the lack of sleep.
If I had this disease, I would not want to know. I would rather live a happy life and not know that I could die at any moment from sleep. Everyday life has a risk of dying, but the chances would be higher with this disease. Knowing that I would die would make me depressed and unhappy. Instead, I would want to live a normal life and accept the symptoms when they came.

Taylor Anderson

Anonymous said...

Fatal Familial Isomnia is a genetic disease that prevents a person from sleeping, and that lack of sleep eventually kills them. Symptoms are inability to swallow or talk, excessive coughing, uncontrollable body movements, strange dreams, and obviously, the inability to fall asleep. Because FFI is genetic, it is not common. But those who have it can die from it as early as nine months. It is probably not checked for too often because general sleeping problems are common and are not taken as a big deal, until a certain extent. If I was diagnosed with FFI I would want to know. I would rather know I was going to die eventually from the disease so I would be able to cope and spend time with loved ones then anxiously wondering my life if I had it or not. All the worrying and doubt of not knowing would probably kill you faster than the disease itself.
-Matt Magyar

Anonymous said...

Fatal Familial Insomnia is a genetic disease in which one suffers from lack of sleep and can lead to death from sleep depravation. The symptoms of course include lack of sleep but also things like coughing, inability to focus or control the body. Because this disease is genetic, there is a 50:50 chance that it will be passed down. If I had FFI, I would like to know for a few different reasons. One, I would like to know because if I did, I wouldn't want to have children because I don't want to chance the fact that it could be passed down and wouldn't want to be the reason for someone suffering something like this if I can avoid it. Also, I would like to know because I would want to be aware of it and know that I may not have much longer to live and I, as well as my family and friends, are prepared for the worst.

Kailey McGee

Patrick Chabai said...

In class the other day, we talked about Fatal Familial Insomnia, and how it could be, well, fatal. Although most people who have it, dont know it, and could have it for a very long time, and not even know it, and they might die from it later in life. This disease causes the person who is infected by it, to not be able to sleep for a full night, or even sleep at all. Some of the symptoms for FFI are not easily noticed, such as not good amounts of sleep, or incessant coughing, and other symptoms. As of right now, the studies show that FFI is a genetic disease, and is almost always caused by genetics. If it was a possibility that I could have the illness, and I took the test for it, I would want to know if I had it, because then I could start living my life to the fullest, instead of acting conservative about my actions and other things.

Morgan Ward said...

Fatal Familial Insomnia, is a Genitic disease that cause a persons body to sut down due to lack of sleep. The body becomes unable to sleep and function and is filled with pain and aces. if this disease ran in my family i would have to find out. I would want to know not only for my piece of mind but for my family and my husband and children. I think it would be unfair to marry and have children and subject them to this. The husband could not catch the disease but he would run the rick of losing people he loves. So i would have to know.

Anonymous said...

Fatal Familial Insomnia is a disease caused by genetics that makes sleeping for someone nearly impossible. Common symptoms of this disease is constant coughing, unable to sleep, and having no control over your body. It is a very rare disease and the chances of you getting it if your parents have it is a 50/50 chance. You can go several years without even noticing you have this disease.

I believe if I had this disease then I would definitely want to know. I would want to make the best of the days I have left and I would want to know in advance in order to prevent having kids and making them suffer through the same thing.
-Sarah Cook

Anonymous said...

Fatal Familial Insomnia is a life threatening genetic disease. The disease will show up randomly in a person and will most likely take their life shortly after. The person can develop symptoms such as persistent cough, unsteadiness, inability to focus, etc. This disease is obviously caused by the inability to sleep, more specifically the inability of any deep sleep. The disease can go undetected for many, many years until it randomly shows up. If I had FFI I would want to know. The worrying over wondering all the time if you had it could itself be fatal. I would want to know so I could live my life to the fullest, because If I had it I wouldn't have a very long life. I would want to make my life as productive and fulfilling as possible if I was going to die young.
_taylor atwell

Anonymous said...

Fatal Familial Insomnia is a genetic disease that keeps someone awake. If a person suffers from this disease, he can’t sleep for days. Some other symptoms could include not being able to speak, focus, or even swallow and having a continuous cough. This disease can go undetected for months or even years, and it can eventually cause a person to die. Since it is a genetic disease, there is a 50/50 chance of getting FFI if either of your parents had it. I would not want to know if I had Fatal Familial Insomnia. Even though I would know that I would be likely to die soon and I could do things I wanted to do before my time was up on earth, I think it would be too depressing to know that I had a deathly disease. If I didn’t know, I could continue to live my life without worrying about my condition but if I did know I had the disease I would be constantly thinking and worrying about it and when I was going to die.
Meredith Peacock

gabriella borden said...

Fatal Familio Insomnia is a genetic mutation that effects the way people sleep. This disease is genetic and most people who have this disease received it from there parents at a 50/50 chance. But if your parents do not the gene makeup then the chances of you getting FFI is very slim. This genetic mutation can last for months that can increase into years without it ever being detected. If some one does have the disease then there symptoms would be sleep deprivation, panic attacks, a continuous cough, and unfortunatly they can soon turn unrespesive because of there lack of sleep. People who have FFI do eventually die at a young age or is placed into a coma. If I had the disease I would like to know right away. Eventhough there is not a cure for this disease I would still be able to prepare myself for what can happen next and seek some sort of help. Last thing I want to die from is from the lack of sleep.
Gabriella Borden

Anonymous said...

Fatal Familial Insomnia is a genetic disorder that inables a person to sleep. In other words it is sleep deprevation and it can result in death. This disease can go unknown or unnoticed for about 50 years. Some of the symptons of this disease are mainly lack of sleep, coughing, and unable to function correctly. If i had FFI i would definetly like to find out and know as soon as possible. I would like to know because if i was young and had no kids i would want to keep it like that because if i had the disease there is a 50/50 chance my children would as well, and i wouldnt want them to go through that pain an agony. Another reason i would like to know is becasue i would want to make the most of the time i have left to live but also make sure i was ready in my heart for Jesus Christ to come again so i can spend eternity with him in heaven.

Anonymous said...

Fatal Familial Insomnia is a genetic disorder that enables a person to sleep. In other words it is sleep deprivation and it can result in death. This disease can go unknown or unnoticed for about 50 years. Some of the symptoms of this disease are mainly lack of sleep, coughing, and unable to function correctly. If i had FFI i would definitely like to find out and know as soon as possible. I would like to know because if i was young and had no kids i would want to keep it like that because if i had the disease there is a 50/50 chance my children would as well, and i wouldn’t want them to go through that pain an agony. Another reason i would like to know is because i would want to make the most of the time i have left to live but also make sure i was ready in my heart for Jesus Christ to come again so i can spend eternity with him in heaven.

-Cambria Trunzo

p.s. I posted this twice becasue i forgot my name the first time. sorry!